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Privacy Policy

PURPOSE
The National Education Alliance for Borderline Personality Disorder, Inc. (“NEABPD”) respects the privacy of individuals and is committed to the responsible stewardship of personal information.

This Privacy Policy summarizes how we securely collect data through our website and other sources, use such data to support the mission of our organization, and maintain such data in a responsible and appropriate manner.

NEABPD may issue a separate privacy notice tailored to a specific use case. If you receive such a notice, that notice will control to the extent that it differs from this Privacy Policy.

Please note that your access to and use of our website is also subject to our Terms and Conditions of Use.

This Privacy Policy does not apply to personal data collected and used for employment processes. Employees of NEABPD should refer to the employee handbook for information about how such data is managed.

CONTACT INFORMATION
If you have any questions about this Privacy Policy or wish to assert any rights that you may have pursuant to applicable privacy laws, please contact us at:

National Education Alliance for Borderline Personality Disorder

Mail: c/o Abby Ingber
52 White Beeches Drive, Township of Washington
NJ 07676
United States of America
Email: info@neabpd.org
Phone: +1 (201) 965-6780

DATA TYPES
Unless otherwise specified in this Privacy Policy, personally identifiable information (“PII”) means any information that can identify an individual directly or when paired with other information.

We may collect, use, store, share, and transfer different categories of PII and non-personal information, including but not limited to:

  • Identity—First name, last name, username or similar identifier, marital status, title, date of birth, gender identifier
  • Contact—Physical address, email address, telephone number
  • Financial—Bank and payment details
  • Employment—Employer and employment history
  • Transaction—Records of transactions in connection with services you have received from us
  • Usage—Information about how you use our website and other services
  • Communications—Your preferences in receiving materials regarding our services
  • Sensitive—Details about your race or ethnicity, health data, other PII that may also be considered sensitive PII under applicable law
  • Technical—IP address, login data, browser type and version, time zone setting and location, browser plug-in types and versions, operating system and platform, other technology on the devices you use to access our website, your language and location preferences, length of visits and volume of activity on our website.

COLLECTION METHODS
Direct Interactions. You may directly provide PII when you, for example:

  • Contact NEABPD or its employees by email, phone, or mail
  • Donate to us
  • Register for or participate in our services or events
  • Sign up to receive information
  • Apply for volunteer opportunities
  • Provide feedback

Automated Interactions. As you interact with our website, and in some email communications, we may automatically collect certain technical data using:

  • “Cookies,” which are small files that are automatically stored on your computer when you visit a website.
  • “Web beacons,” which are small strings of code that are placed on websites and in email messages, and/or online ads.
  • “IP address,” which is a number assigned to your device whenever you access the Internet that allows devices and servers to recognize and communicate with each other.
  • “Web server logs,” which are files where website activity is stored.
  • Additional technologies, as we ensure our systems remain current.
  • Please note that, while some web browsers may transmit “do-not-track” signals to websites with which the browser communicates, our website does not currently respond to these signals.

Third Parties. We may receive PII about our website visitors from analytics providers such as Google, advertising networks, search information providers, other third parties, and public sources.

DATA USAGE
NEABPD and/or the service providers, vendors, and other third parties we hire to perform services on our behalf may use your PII to take certain action including, without limitation:

  • Comply with or fulfill a request that you have made
  • Send you information about our organization, including our programs
  • Operate our programs
  • Respond to a question, comment, or concern
  • Maintain our relationship with you
  • Communicate with you for fundraising purposes
  • Help us develop additional services that are likely to be of interest to you and yours
  • Investigate or respond to issues such as complaints or security threats, and for fraud prevention
  • Conduct depersonalized and aggregate statistical studies and research related to services and the use of our website to help us understand trends and needs
  • Exercise our legal rights
  • Respond to legal process and other government or law enforcement agency requests
  • Conduct audits (such as compliance or corporate audits)
  • Form a view on what we think you want or need to decide which services and materials may be relevant for you (“Marketing”)
  • Use third-party web analytics services (like Google Analytics) to collect and analyze usage trends
  • Improve user experience by:
    • Recognizing your device
    • Storing your preferences and settings to provide you with a personalized experience and to allow you to navigate between pages efficiently
    • Understanding the web pages of the website you have visited
    • Assisting with security functions

Unless otherwise permitted or required by law, we will not process PII for purposes not disclosed in this Privacy Policy without your consent.

DATA SHARING
We may share your PII with the parties set out below for the data usage purposes set out above:

  • Internal Parties—Individuals or groups within NEABPD for operational purposes.
  • Partners—Our related organizations, affiliates, and business partners, as applicable.
  • Advisors—Professional advisors such as lawyers, bankers, auditors, consultants, and insurers.
  • Government—U.S. Internal Revenue Service and other government agencies, regulators, and authorities.
  • Third Parties—Third parties who perform services on our behalf, such as fundraising assistance.
    • We do not allow our third-party service providers to use your PII for their own direct marketing purposes and only permit them to process your PII for specified purposes and in accordance with our instructions.
    • We do not sell your PII to any third parties.
    • We may allow third parties to use information that has been de-identified or aggregated.

If we transfer your PII to another country, we do so in compliance with all applicable data protection laws.

DATA RETENTION
We only retain your PII for as long as necessary to fulfill the purposes for which we collected it. To determine the appropriate retention period for PII, we consider the amount, nature, and sensitivity of the PII, any applicable legal requirements, the potential risk of harm from unauthorized use or disclosure of your PII, the purposes for which we process your PII, and whether we can achieve those purposes through other means.

DATA SECURITY
We limit access to your PII to those who have an actual need to know.

We have security measures built into our system to prevent your PII from being misused in any way while it is under our control. For example, anyone who is granted access to our data management platform is required to enable multi-factor authentication. Additionally, the Family Connections application is built on our data management platform, then embedded in our website.

In the event of an actual or potential data breach, we will notify you and any applicable regulator as required by law.

EXTERNAL LINKS
As a convenience to visitors and users of our website, NEABPD may offer links to other sites that we believe may offer useful information. The inclusion of a link on the NEABPD website does not imply our endorsement of the linked site or service.

This Privacy Policy is no longer applicable when you leave our site by way of link. Each of these linked sites maintains its own independent privacy policies and procedures, which you should consult before providing any of your PII.

CHILDREN’S PRIVACY
We recognize the particularly sensitive nature of children’s data and pay special attention to handling children’s data lawfully and ethically. We comply fully with the U.S. Children’s Online Privacy Protection Act and all other applicable laws.

We do not knowingly solicit data from, or target communications to, children, except for certain instances where we may collect PII of a specific child with informed consent from his or her parent or guardian. If a parent or guardian becomes aware that his or her child has provided us with PII, he or she should notify us using the contact information provided above. Once notified, we will take reasonable steps to delete such data.

We never knowingly collect PII from children under the age of thirteen. If you have reason to believe that a child under the age of thirteen has provided PII to NEABPD through our website, please notify us using the contact information provided above. Once notified, we will take reasonable steps to delete it as soon as practicable.

LAWFUL BASIS
We only use your PII when the law allows us to do so.

Most commonly, we will use your PII in the following circumstances:

  • Contract Performance—We need to fulfil the contract we are about to enter or have entered with you
  • Legitimate Interests—It is necessary for our legitimate interests (or those of a third party) and your interests and fundamental rights do not override those interests
  • Legal Obligation—We need to comply with a legal or regulatory obligation

Less often, we may use your PII in the following situations:

  • Protection of Vital Interests—We need to protect your interests (or someone else’s interests)
  • Public Task—It is needed in the public interest or for official purposes.

Note that we may process your PII for more than one lawful basis depending on the specific purpose for which we are using your data.

We will only use your PII for the purposes for which we collect it, unless we need to use it for another reason and that reason is compatible with the original purpose. If we need to use your PII for an unrelated purpose, we will notify you and we will explain the legal basis which allows us to do so.

Please note that we may process your PII without your knowledge or consent, in compliance with the above rules, where required or permitted by law.

YOUR RIGHTS
Certain jurisdictions afford residents specific privacy rights related to PII, such as the following:

  • Accessing your personal data
  • Correcting inaccuracies in your personal data
  • Deleting your personal data
  • Data portability
  • Opting out of the processing of your personal data for targeted advertising

NEABPD respects your data privacy rights and complies with all applicable laws. To assert your rights, please contact NEABPD using the information provided above.

YOUR CHOICES
We strive to provide you with choices regarding certain PII uses, and have established the following PII control mechanisms for your use:

  • Opt-In: Marketing—You will receive marketing communications from us if you have requested information from us and opted in to receive that marketing.
  • Consent: Third-Party Marketing—We will get your express consent before we share your PII with anyone else for marketing purposes.
  • Opt-Out: Marketing—You can ask us or third parties to stop sending you marketing messages at any time by following the opt-out/unsubscribe links included in any marketing message sent to you. Remember, however, that even if you opt out of receiving these marketing communications, we may still email you to provide a service that you request.
  • Opt-Out: Google Analytics—To prevent Google Analytics from using your information for analytics, you may install the Google Analytics Opt-out Browser Add-on by visiting https://tools.google.com/dlpage/gaoptout.
  • Opt-Out: Cookies—You can change your browser settings to notify you when a cookie is being set or updated, or to allow, block, or delete cookies altogether. For additional information, please consult your browser’s “help” section. If you choose to decline cookies, you may not be able to fully experience all the features of our website.
  • Anonymize: Web Beacons—Since web beacons are used in combination with cookies, if you disable cookies, the web beacons will only detect an anonymous website visit.

POLICY UPDATES
Our website and our activities may change from time to time. As a result, at times it may be necessary for NEABPD to make changes to this Privacy Policy. Please check this Privacy Policy periodically for changes.

If we make any changes, the updated Privacy Policy will be posted with a revised effective date (as below), unless another type of notice is required by applicable law. Your continued use of our website and/or services after any such updates take effect will constitute acceptance of any changes.

Effective as of January 10, 2025